Caring Ambassadors is raising awareness of hepatitis C to help de-stigmatize HCV+ patients, encourage the uptake of HCV screening and testing, and support those with known infection by sharing patient stories through NPR’s StoryCorps.
Please enjoy the stories we have collected so far. We will be adding more monthly so come back often!
Lindy shares her story of ups and downs, from a student at the top of her class, to obtaining her medical degree, to battling with addiction, liver failure, and near-death experiences. Lindy, now an addiction professional, talks about her possible exposure to HCV and her process of liver regeneration.
Kaisa shares her story of immigration, the difficulties adjusting to American life, and how this contributed to her eventual drug use and acquisition of HCV. Kaisa learned she had hepatitis C infection while incarcerated and she shares her inspirational story of recovery, cure and motherhood.
Bea shares her story of growing up in a small town and exploring her ‘hippie’ side during the 1960’s and 1970’s. Bea takes us through her adventures with drug addiction, recovery, marriage, motherhood, spirituality, and obtaining an HCV cure. We hear her perspective on the impact of silence and stigma on HCV and addiction.
Lucinda, a nurse, an advocate, an author, a patient and a brilliant storyteller shares her journey in a heartfelt and honest manner. Gather the nuggets of insight and wisdom she shares through her life through hepatitis c, mental illness, unrelenting advocacy and her beautiful relationship with Alan Franciscus.
Alan, a nationally renowned trainer, executive director, and editor-in-chief of HCV Advocate shares his story led by his friend and fellow advocate, Lucinda Porter about his journey. You will learn about Alan and the stories he holds of the countless patients, educators, and advocates about stigma, discrimination and triumph.
Illinois State Representative Michael McAuliffe and Kim Morreale McAuliffe – Kim lost her father to liver cancer directly related to undiagnosed – or late diagnosis – of HCV. Just over a year after Kim’s father passed, Michael’s uncle passed of advanced liver disease caused by HCV. This sparked a Governor appointed Illinois HCV task force. They share a heartfelt story of loss, advocacy, and tenacity!
Gene shares his story of living with HCV, the experience of being on a liver transplant list, and his process of obtaining a new liver. Gene discusses the impact of living with HCV on his wife and daughter, and honestly captures the experience of stigma that those with HCV may experience.
Dr. Toyin Adeyemi shares her heartfelt story of being a mother, a doctor, an activist, and an African woman in Chicago. Toyin talks about her interest in the human interaction portion of her job at Cook County Health and Hospitals System’s Ruth M. Rothstein CORE Center, a center of excellence for the treatment of infectious diseases. Listen to her views on gender, treatment and the future of HCV.