HCV Resources and Links

The information contained in this Resource Directory is intended as reference material only. The Caring Ambassadors Hepatitis C Program makes no representation nor implies endorsement of any product or service, nor does it accept any responsibility for any claims made by any resources listed.
General Medical Information Sites that Include Information about Hep C
Consumer Health Information
The American Association of Naturopathic Physicians
Internet address: www.naturopathic.org
This official site of the American Association of Naturopathic Physicians offers a variety of resources on naturopathic medicine including a message board, library, and a naturopathic physician finder.

The American College for Advancement in Medicine (ACAM)
Internet address: www.acam.org
The American College for Advancement in Medicine (ACAM) is a nonprofit medical society dedicated to educating physicians and other health care professionals on the latest findings and emerging procedures in preventive/nutritional medicine. ACAM’s goals are to improve skills, knowledge, and diagnostic procedures as they relate to complementary and alternative medicine, to support research, and to develop awareness of alternative methods of medical treatment.

The American Board of Medical Specialties (ABMS)
Internet address: www.certifieddoctor.org
The American Board of Medical Specialties (ABMS) site has a public education program, a physician locator, and information services. The board certification status, location by city and state, and specialty of any physician certified by one or more of 24 member boards of the ABMS can be checked through this site. This service is free to consumers. Listed physicians have subscribed to be included in this service.

The American Medical Association (AMA)
Internet address: www.ama-assn.org
The American Medical Association (AMA) site has a consumer health section that includes links to general health issues, specific conditions, your body, your family’s health, Kids Health Club, Doctor Finder, Hospital Finder, and a Medical Group Practice Finder. The nutrition section has information on such things as vitamins and fitness. It also has a medical glossary. There is a link to recipes, and new ones are posted every two weeks. This link also has information on health-oriented cookbooks and nutritional resources.

Benson-Henry Institute for Mind Body Medicine
Internet address: www.massgeneral.org/bhi/
The Benson-Henry Institute for Mind Body Medicine at Massachusetts General Hospital is a world leader in the study, advancement, and clinical practice of mind/body medicine. The BHI provides outpatient medical services, training for health professionals, corporate and school-based programs, women’s health services, and affiliation for national and international health care systems.

The British Medical Journal
Internet address: www.bmj.com
The British Medical Journal is a free publication with up-to-date information about hepatitis C, among many other topics.

The American Association of Naturopathic Physicians
Internet address: www.naturopathic.org
This official site of the American Association of Naturopathic Physicians offers a variety of resources on naturopathic medicine including a message board, library, and a naturopathic physician finder.

The American College for Advancement in Medicine (ACAM)
Internet address: www.acam.org
The American College for Advancement in Medicine (ACAM) is a nonprofit medical society dedicated to educating physicians and other health care professionals on the latest findings and emerging procedures in preventive/nutritional medicine. ACAM’s goals are to improve skills, knowledge, and diagnostic procedures as they relate to complementary and alternative medicine, to support research, and to develop awareness of alternative methods of medical treatment.

The American Board of Medical Specialties (ABMS)
Internet address: www.certifieddoctor.org
The American Board of Medical Specialties (ABMS) site has a public education program, a physician locator, and information services. The board certification status, location by city and state, and specialty of any physician certified by one or more of 24 member boards of the ABMS can be checked through this site. This service is free to consumers. Listed physicians have subscribed to be included in this service.

The American Medical Association (AMA)
Internet address: www.ama-assn.org
The American Medical Association (AMA) site has a consumer health section that includes links to general health issues, specific conditions, your body, your family’s health, Kids Health Club, Doctor Finder, Hospital Finder, and a Medical Group Practice Finder. The nutrition section has information on such things as vitamins and fitness. It also has a medical glossary. There is a link to recipes, and new ones are posted every two weeks. This link also has information on health-oriented cookbooks and nutritional resources.

Benson-Henry Institute for Mind Body Medicine
Internet address: www.massgeneral.org/bhi/ 
The Benson-Henry Institute for Mind Body Medicine at Massachusetts General Hospital is a world leader in the study, advancement, and clinical practice of mind/body medicine. The BHI provides outpatient medical services, training for health professionals, corporate and school-based programs, women’s health services, and affiliation for national and international health care systems.

The British Medical Journal
Internet address: www.bmj.com
The British Medical Journal is a free publication with up-to-date information about hepatitis C, among many other topics.

Center for Mindfulness in Medicine, Health Care, and Society (CFM)
Internet address: www.umassmed.edu/cfm
The Center for Mindfulness is an innovative leader in mind-body medicine and mindfulness-based treatment and research investigations, pioneering the integration of meditation and mindfulness into mainstream medicine and health care. They offer a number of pathways for people to cultivate a sense of well-being, confidence, and creativity.

CenterWatch
Internet address: www.centerwatch.com
CenterWatch is a clinical trials listing service of industry and government sponsored trials including recently FDA approved drug therapies.

ClinicalTrials.gov
Internet address: www.clinicaltrials.gov
This site is sponsored by the National Cancer Institute. It provides current information on many clinical trials.

ConsumerLab.com
Internet address: www.consumerlab.com
Vitamins, herbs, and other supplements are not regularly tested by any government organization. ConsumerLab.com continually evaluates nutritional supplements in a laboratory environment. It also investigates problems with drugs.

Doc Misha’s Chicken Soup Chinese Medicine
Internet address: www.docmisha.com
This site has general information about Chinese medicine. There is specific information about HIV/AIDS and hepatitis C.

Dr. Koop.com
Internet address: www.drkoop.com
Dr. Koop is a former United States Surgeon General. This site provides up-to-date information on hepatitis C and available treatments.

Dr. Weil.com
Internet address: www.drweil.com
Dr. Andrew Weil is a leader in the integration of western medicine and the exploding field of alternative medicine. This site has extensive information about integrated medicine.

The Glycemic Index
Internet address: www.glycemicindex.com/
Not all carbohydrate foods are created equal, in fact they behave quite differently in our bodies. The glycemic index or GI describes this difference by ranking carbohydrates according to their effect on our blood glucose levels.

Harvard School of Public Health Nutrition Source
Internet address: www.hsph.harvard.edu/nutritionsource/index.html
Harvard School of Public Health Nutrition Source is to provide timely information on diet and nutrition for clinicians, allied health professionals, and the public.

Healthfinder
Internet address: www.healthfinder.gov
The Healthfinder site is easy to navigate and has a tremendous amount of information. There is a lot of good information on hepatitis C and non-western medicine under the “Hot Topics” section. The non-western medicine information includes links for general information, therapies, nutrition and lifestyle information, quackery and fraud, training and associations, and other topics.

Health World On-line
Internet address: www.healthy.net This comprehensive site provides access to information on a variety of therapies including acupuncture, Ayurveda, Chinese medicine, chiropractic medicine, homeopathy, and others. There are links to finding a health care provider in several different disciplines. This site has links to information on several diseases and conditions including hepatitis.

The Hepatitis B Foundation
Internet address: www.hepb.org
The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure for hepatitis B and improving the quality of life of people affected by the illness. There are Chinese, Korean, and Vietnamese language versions of this site.

Hepatitis C Meditations
nternet address: www.HepCMeditations.org Hepatitis C Meditations offers a meditation CD to help meet the challenges that hepatitis C brings.

Hepatitis Central
Internet address: www.hepatitis-central.com
Hepatitis Central offers extensive information about all forms of hepatitis including hepatitis A, B, C, D, E, G, autoimmune hepatitis, and more.

HIVandHepatitis.com
Internet address: www.HIVandHepatitis.com
The staff of HIV and Hepatitis.com state their common objective is to create a quality online publication that provides accurate, timely and cutting-edge information about treatment for HIV/AIDS, chronic hepatitis B and hepatitis C, and co-infection with HIV/HCV and HIV/HBV. This site has an extensive list of consulting editors who review all materials before posting.

ITM On-line (Institute for Traditional Medicine)
Internet address: www.itmonline.org
This is the site of the Institute for Traditional Medicine. The Articles section has a Disorders Index that will take you to articles on hepatitis C. The START Index has good basic information on a wide variety of topics including acupuncture, the best time of day to take herbs, qi gong, the immune system, pregnancy, and Chinese herbs.

The Lancet
Internet address: www.thelancet.com
The Lancet is a peer-reviewed medical journal. You are able to search for articles on hepatitis C and are able to view the abstracts free of charge; full text articles can be viewed for a fee.

Lab Tests Online
Internet address: www.labtestsonline.org/understanding/index.html
Lab Tests Online is designed to help patients and caregivers better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.

National Association of County Veteran Service Officers
Internet address: www.nacvso.org
The National Association of County Veterans Service Officers is an organization made up of local government employees. Their members are tasked with assisting veterans in developing and processing their claims.

National AIDS Treatment Advocacy Project (NATAP)
Internet address: www.natap.org/
The NATAP mission is to educate individuals about HIV and hepatitis treatments and to advocate on the behalf of all people living with HIV/AIDS and HCV. The information on the site is scientifically oriented, abundant, and comprehensive in its coverage of both HIV and hepatitis. The site is regularly updated with new articles, studies, and highlights from various major conferences.

National Center for Complementary and Alternative Medicine (NCCAM)
Internet address: www.nccam.nih.gov
The National Center for Complementary and Alternative Medicine (NCCAM) at the National Institutes of Health (NIH) conducts and supports basic and applied research and training and disseminates information on complementary and alternative medicine to practitioners and the public. There are sections on health information, current and completed research, news and events, and alerts and advisories.

The New England Journal of Medicine
Internet address: www.nejm.org
This is the site of the well-respected medical journal, The New England Journal of Medicine. It provides access to the PubMed database from which you can search for and order medical journal articles on hepatitis C.

Net Wellness
Internet address: www.netwellness.com
This site is sponsored by the University of Cincinnati but is a joint project of Case Western Reserve University, Ohio State University, and the University of Cincinnati. The site is a consumer health information site and has sections on current health news, health topics, clinical trials and more.

Oasis, Inc.
Internet address: www.oasisclinic.org
The Organization to Achieve Solutions in Substance Abuse (O.A.S.I.S.) is a nonprofit organization. The primary mission of Oasis is to provide low-cost, subsidized medical care, clinical research studies, and provision of and/or access to social and vocational rehabilitation services for medically marginalized former or current drug and alcohol users.

United Network for Organ Sharing
Internet address: www.unos.org
This is the site of the United Network for Organ Sharing whose mission is to advance organ availability and transplantation. The site has news articles related to organ transplantation.

U.S. Pharmocopeia (USP)
Internet address: www.usp.org
In pursuit of its mission to promote public health, U.S. Pharmocopeia establishes state-of-the-art standards to ensure the quality of medicines for human and veterinary use. USP also develops authoritative information about the appropriate use of medicines. The site has prescription drug information and information about supplements.

The VA National Hepatitis Program
Internet address: www.hepatitis.va.gov
The Veterans Affairs National Hepatitis C Web site provides information about viral hepatitis for health care providers inside and outside the VA system, veterans, and the general public. The “Patient’s Corner” area of the site has basic information on hepatitis C for patients, their families, and the general public.

VeryWell
Internet address: https://www.verywell.com/hepatitis-4014707 
Verywell is your source for reliable, understandable information on hundreds of health and wellness topics that always keeps the reasons you come to us in mind. Know more. Feel better.

WebMD
Internet address: www.webmd.com
This site is owned by WebMD Corporation. This is a comprehensive on-line resource committed to providing general health information and support. The site is extensive.

Web Resources for Information on Healthcare Providers
A Note About Fee-Based Referral Services
Many referral services are fee-based, which means that while they may be free for you to access, health care providers pay a fee to be listed. Therefore, these services do not guarantee the experience level of the health care provider, they just provide general information. It is up to you to find out if a health care provider listed with these services has experience with hepatitis C.

Information and Referral Resources on the Internet for Western (Allopathic and Osteopathic) Health Care Providers

American Medical Association
Internet address: http://www.ama-assn.org

The Doctor Finder link or AMA Physician Select allows you to search for a physician by name or medical specialty.

American Board of Medical Specialties (ABMS)
Internet address: http://www.certifieddoctor.org

This site has a public education program, a physician locator, and information services. You can verify the board certification status, location by city and state, and specialty of any physician certified by one or more of the 24 member boards of the ABMS. This service is free to consumers but physicians have subscribed to be listed in this service.

Information and Referral Resources on the Internet for Non-Western Health Care Providers

American Institute of Homeopathy
801 North Fairfax Street, Suite 306
Alexandria, VA 22314
Phone: 703-246-9501
E-mail: aih@bigplanet.com
Internet address: http://www.homeopathyusa.org

American Naturopathic Medical Association
P.O. Box 96273
Las Vegas, Nevada 89193
Phone: 702-897-7053
Internet address: http://www.anma.com

The American Naturopathic Medical Association will make referrals to naturopathic physicians and homeopathic practitioners.

HealthWorld On-Line
Internet address: http://www.healthy.net

This comprehensive site provides links to resources for help in finding a health care provider in several different disciplines.

Institute for Traditional Medicine (ITM)
Internet address: http://www.itmonline.org

This site has extensive information about CAM disciplines. There are also direct links to other sites on topics such as Chinese medicine, Tibetan medicine, Ayurvedic medicine, Native American medicine, western medicine, and others.

Healthfinder
Internet address: http://www.healthfinder.gov

This site is sponsored by the U.S. Department of Health and Human Services. In addition to a Health Library, the section entitled Health Care has extensive information about finding quality health care.

Pharmaceutical Patient Assistance Programs

Abbvie Patient Assistance
Phone: 1-844-2proCeed
Internet address:  https://www.viekira.com/proceed-program

Bristol Myers Squibb
Internet address: http://patientsupportconnect.com

For those with commercial insurance the Daklinza co-pay card:  https://bmsdm.secure.force.com/patientsupportconnect/patient

Gilead Support Path
Phone: 855-769-7284
Internet address: https://www.harvoni.com/support-and-savings/onward

For those with commercial insurance the Harvoni co-pay card:https://http://www.harvoni.com/support-and-savings/co-pay-coupon-registration

For those with commercial insurance the Sovaldi co-pay card:https://https://www.sovaldi.com/coupons

Johnson and Johnson Patient Assistance
Phone: 800-652-6227
Internet address: www.jipaf.org

Genentech Access Solutions
Phone: 866-422-2377
Pegasys: 888-941-3331.
Internet address: www.Pegasysaccesssolutions.com

Merck CARES Patient Assistance Program
Phone: (800) PAP-5400
Internet address: www.MerckHelps.com

FDA Option for Physicians to Request Individual Patient Expanded Access for use of Investigational Drug
Internet address: http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm504579.htm 

Organizations and Support Groups

Treatment Action Group
Internet address: www.treatmentactiongroup.org 
We are science-based treatment activists working to expand and accelerate vital research and effective community engagement with research and policy institutions.

The ARK
Address 1: Chapel Rock Christian Church
Address 2: 2020 N. Girls School Rd.
City: Indianapolis
State: IN
Zip Code: 46214
Day Group Meets: Third Saturday except July, August and December
Time Group Meets: Noon
Contact name: Mike Rickey
Contact Phone: 317-894-4429
Contact email: rickeymikee@sbcglobal.net

AIDS Treatment Data Network (The Network)
611 Broadway, Suite 613
New York, NY 10012
Phone: 212-260-8868 or (800)734-7104, ext. 16 (toll free in New York)
Fax: 212-260-8869
Internet address: www.atdn.org
The Network provides local and national services to people with HIV and coinfected with HCV/HIV. The Access Project (TheAccessProject@aol.com) is the agency’s national treatment advocacy and access program. They advocate for patients and assist providers in obtaining treatments for hepatitis, HIV, and AIDS related conditions.

American Liver Foundation *
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Phone: 212-668-1000 or 800-676-9340
Fax: 212-483-8179
Internet address: www.liverfoundation.org
The American Liver Foundation is a national, voluntary, nonprofit health agency dedicated to preventing, treating, and curing hepatitis and all liver diseases.

California Hepatitis Alliance *
Center for Health Improvement
1330 21 Street, Suite 100
Sacramento, California 95811
Phone: 916-930-9200
Internet address: www.calhep.org
The California Hepatitis Alliance (CalHEP) seeks to reduce the scope and consequences of the hepatitis B and C epidemics, which disproportionately affect California’s ethnic communities and the socioeconomically underserved. Committed to culturally competent public education and awareness, CalHep focuses on sound public health policy and advocacy to improve California’s public health approach to liver wellness.

Caring Ambassadors Program *
PO Box 1748
Oregon City, OR 97045
Phone: 503-632-9032
Internet address: www.HepCChallenge.org
The Caring Ambassadors Hepatitis C Program is a national nonprofit organization devoted exclusively to meeting the needs of the hepatitis C community. The mission is to improve the lives of people living with hepatitis C through information and awareness.

H.E.A.L.S of the South *
PO Box 180813
Tallahassee, FL 32318
Phone: 850-443-8029
Internet address: https://www.facebook.com/HealsOfTheSouth 
The goal at HEALS is to expand awareness about liver health through educational programs, literature, and public speaking. Young people, veterans, minorities, and prison populations are some of the groups targeted by HEALS. By educating the public, they hope to aid in the prevention of hepatitis in all its forms.

Help & Education for Liver Patients (HELP!)
P.O. Box 2028
Santa Cruz, CA 95063-2028
Phone: 831-462-2979
Internet address: www.help4hcv.org
HELP! is a 501c3 non–profit organization dedicated to hepatitis C and organ donor awareness; support services for liver patients and their families; and integrated liver–&–life counseling for recovering addicts. Since 1998, HELP! has provided compassionate support, education, resource referral, and advocacy at all stages of liver disease, from newly-diagnosed to pre– & post–transplant to end-of-life.

Hepatitis B Foundation
3805 Old Easton Road
Doylestown, PA 18902
Phone: (215) 489-4900
Fax: (215) 489-4920
Internet address: www.hepb.org
The Hepatitis B Foundation is a national non–profit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Their commitment includes funding focused research for HBV and HCV, promoting disease awareness, supporting immunization and treatment initiatives and serving as the primary source of information for patients and their families, the medical and scientific community and the general public.

Hep C Connection *
1325 S. Colorado Boulevard, B-302
Denver, CO 80222
Phone: 303-860-0800 or 800-522-4372
Fax: 303-860-7481
Internet address: www.hepc-connection.org
Hep C Connection provides a hepatitis C network and support system to assist hepatitis C–challenged individuals and their families.

Hepatitis C Association *
1351 Cooper Road
Scotch Plains, NJ 07076
Phone: 866-437-4377
Fax: 908-561-4575
Internet address: www.hepcassoc.org
The Hepatitis C Association focuses on educating the public, creating awareness, promoting organ donation, and offering support to hepatitis patients. They do this through publications, an Internet site, a 24-hour toll–free support line, awareness pins, and educational programs.

The Hepatitis C Mentor & Support Group, Inc.
Email: HepatitisCMSG@gmail.com
Phone: 917-612-2731
Internet address: http://www.hepatitiscmsg.org/
We formed the Hepatitis C Mentor and Support Group to address a lack of supportive services for people living with Hepatitis C. Support groups and patient mentoring services have been shown to be important elements of successful and cost effective medical care for patients with Hepatitis C and other chronic health conditions. These services improve the quality of life, as well as medical results, for individual patients. Support groups and patient mentoring services are more important than ever as we enter a new and promising era of treatment for Hepatitis C.

VIRTUAL TRAININGS AND SUPPORT GROUPS ***NOW AVAILABLE***

The Hepatitis C Education and Support Group Assistance Program has added conference call services. This will fill various needs, such as trainings for facilitators or educational support groups for patients in areas where there is no education or support available. This has proven to be helpful in overcoming obstacles for those who cannot attend in person. http://www.hepatitiscmsg.org/the-hepatitis-c-education-and-support-group-assistance-program.html

Hepatitis C Support Project *
P.O. Box 427037
San Francisco, CA 94142-7037
Phone: 415-587-8908
Internet address: www.hcvadvocate.org
The Hepatitis Support Project offers support to those who are affected by the hepatitis C virus (HCV). Support is provided through information and education, and access to support groups. The Project seeks to serve the HCV community and the general public.

Hepatitis Education Project *
The Maritime Building
911 Western Ave #302
Seattle WA 98104
Phone: 206-732-0311
Internet address: www.hepeducation.org
The Hepatitis Education Project works to raise awareness about the facts concerning hepatitis patients and the resources available to help those who live with the disease..

Hep Free Hawaii
Internet address: www.hepfreehawaii.org/#welcome 
We are Hep Free Hawai‘i. We are a coalition of local, national, and global partners dedicated to increasing viral hepatitis awareness and access to care throughout our state. Hep Free Hawai‘i thrives because we all work together, connecting our communities and our islands to make Hawai‘i truly “Hep Free.” 

Hepatitis Prevention, Education, Treatment and Support Network of Hawaii (HEPTS) *
3254 Olu Street
Honolulu, HI 96816
Phone: 808-221-6204
Fax: 808-758-5797
E-mail: KenAkinaka@aol.com
HEPTS is the only hepatitis B and C advocacy organization in Hawaii. It offers educational presentations and training opportunities for people with hepatitis and health care professionals.

Hepatitis C Alliance
601 Bus Loop 70 W., Suite 106
Columbia, MO 65203
Phone: 866-434-1975
Internet address: www.mohepc.org/ 
The MO Hepatitis C Alliance mission is to provide education, testing, and follow-up care to all people affected by HCV in rural and Mid Missouri. They work to increase awareness of HCV to the general public, healthcare providers, and the corporate community.

National Alliance of State and Territorial AIDS Directors (NASTAD)
444 North Capitol Street, NW, Suite 339
Washington D.C. 20001
Phone: 202-434-8090
Internet address: www.nastad.org
NASTAD strengthens state and territory-based leadership, expertise, and advocacy and brings them to bear in reducing the incidence of HIV infection and on providing care and support to all who live with HIV/AIDS. NASTAD’s vision is a world free of HIV/AIDS.

National Viral Hepatitis Roundtable
Internet address: www.nvhr.org
The National Viral Hepatitis Roundtable is a coalition of public, private, and voluntary organizations dedicated to reducing the incidence of infection, morbidity, and mortality from viral hepatitis in the United States through strategic planning, leadership, coordination, advocacy, and research.

St. Luke’s Texas Liver Coalition
6620 Main St., Suite 1505
Houston, TX 77030
Ph: 832-355-5119 / 800-72-LIVER
Fax: 832-355-5550
Web: www.texasliver.org
The Texas Liver Coalition started in 1995 as a Hepatitis C Support Group, in 2002 we were incorporated into the St. Luke’s Episcopal Hospital and became the St. Luke’s Texas Liver Coalition. They offer educational trainings, free HCV & HBV testing throughout Texas and the confirmatory test, have a toll free LIver Line for people to call and ask questions. They are also available through email. TLC continues to run 20+ Support Groups, provide twice a month Hepatitis C Treatment Training Classes (teach patients that are getting ready to go through treatment), and designed an informational/educational CD called Hep C D with various links, presentations, etc. that is given to interested clients, and I try to find resources for people that need help.

San Louis Obispo Co. Hepatitis C Project *
P.O. Box 15130
San Luis Obispo, Ca 93406
Phone: 805-543-4372
Internet address: www.slohepc.org
The San Luis Obispo County Hepatitis C Task Force is dedicated to educational outreach, public awareness, and the on-going study of community needs regarding the impact of Hepatitis C in San Luis Obispo county.

Treatment Action Group
611 Broadway, Ste. 308
New York, NY 10012-2608
Phone: 212-253-7922
Internet address: www.treatmentactiongroup.org
The Treatment Action Group’s Hepatitis/HIV Project collaborates with activists, community members, scientists, government, and drug companies to make life-saving information, prevention, and safer, more tolerable, and more effective treatment for viral hepatitis and HIV available to all people who need it. It forges coalitions with activists worldwide to demand universal access to prevention, care and treatment for viral hepatitis and HIV.

Women of a Certain Age . . .
https://www.healthywomenover50.org/
Women of a Certain Age… provides local resources for women over fifty for information and support regarding HIV/AIDS, sexual health and Hepatitis C prevention education. WOACA disseminates this information through peer educators in community settings including churches, garden groups, workplace sites and other venues. WOACA was founded by Jacki Gethner (LMT, Certified Drug & Alcohol Counselor and a resident of Portland, Oregon. Jacki is a renowned international health advocate, activist and educator.

NNAAPC-HCV
National Native American AIDS Prevention Center’s Viral Hepatitis C (HCV) Awareness Program
http://www.nnaapc-hcv.org/
Our mission is to, “Eliminate HCV/HIV/AIDS and confront related health and social determinants that negatively impact American Indian, Alaska Native, Native Hawaiian peoples”

Harm Reduction Resources
American Association for the Treatment of Opioid Dependence (AATOD)
Internet address: www.aatod.org
AATOD was founded to enhance the quality of patient care in treatment programs by promoting the growth and development of comprehensive methadone treatment services throughout the United States. AATOD works with federal agencies and state substance abuse authorities concerning opioid treatment policy. The organization offers a program for providers entitled, the Hepatitis Education Training for Opioid Treatment Providers.

Addiction Center
Internet address: https://www.addictioncenter.com
Are you or a loved one struggling with prescription painkillers, alcohol or street drugs like heroin? Call our drug abuse hotline to be connected with one of our rehabs or detox centers and start your new life today.

Centers for Disease Control and Prevention/Injection Drug Users
Internet address: www.cdc.gov/ncidod/diseases/hepatitis/c/index.htm#idu
This location on the CDC site has links to sources of information about viral hepatitis and its prevention in the setting of injection drug use.

Chicago Recovery Alliance (CRA)
Internet address: www.anypositivechange.org/menu.html
CRA is a racially and ethnically diverse group composed of people living with HIV and drug use, working in addiction treatment, health care, education, law and assorted other areas. See also CRA’s better vein care/safer injection guide at www.anypositivechange.org/bvcsi.html.

Florida Hepatitis and Liver Failure Prevention and Control Program
Internet address: www.doh.state.fl.us/disease_ctrl/aids/hep/index.html
Operated by the Florida Department of Health, this site provides viral hepatitis information, and hepatitis vaccine and testing availability. The Florida Hepatitis C Hotline is toll free at 1-866-FLA-HEPC. The hotline provides hepatitis C education and describes testing options.

Harm Reduction Coalition (HRC)
Internet address: www.harmreduction.org
The Harm Reduction Coalition is committed to reducing drug-related harm among individuals and communities by initiating and promoting local, regional, and national harm reduction education, interventions, and community organizing. HRC fosters alternative models to conventional health and human services and drug treatment; challenges traditional client/provider relationships; and provides resources, educational materials, and support to health professionals and drug users in their communities to address drug-related harm.

Immunization Action Coalition, Model Programs for Hepatitis A, B, and C Prevention
Internet address: www.immunize.org/
This location on the Immunization Action Coalition Internet site provides links to harm reduction programs and resources.

National Development and Research Institutes, Center for Drug Use and HIV Research
Internet address: www.cduhr.org
CDUHR is funded by the National Institute on Drug Abuse. It is the first center for the socio-behavioral study of drug use and HIV in the United States. The Center is dedicated to increasing the understanding of the drug use-HIV/AIDS epidemic, particularly among high-risk individuals. The goal of the Center is to advance knowledge regarding social-level and other influences on HIV-related risk behavior, prevention and transmission. In addition, the Center facilitates the development of timely new research efforts and disseminates information to researchers and service providers.

North American Syringe Exchange Network (NASEN)
Internet address: www.nasen.org
NASEN is dedicated to the creation, expansion and continued existence of syringe exchange programs as a proven method of stopping the transmission of blood borne pathogens in the injecting drug using community. Site contains numerous links to harm reduction information.

Substance Abuse and Mental Health Services Administration (SAMHSA)
Internet address: www.samhsa.gov 
SAMHSA is an agency of the U.S. Department of Health and Human Services. SAMHSA’s vision is a life in the community for everyone. SAMHSA’s mission is to build resilience and facilitate recovery for people with or at risk for substance abuse and mental illness. The SAMHSA site has subsections including, but not limited to:

Government/Consumer Resources
Americans with Disabilities Act Information Line
Phone: 800-514-0301 (voice) or 800-514-0383 (TDD)

Centers for Disease Control and Prevention
Internet address: www.cdc.gov

Consumer Health Information Research
Phone: 816-228-4595

Department of Justice
Internet address: www.usdoj.gov

Equal Employment Opportunity Commission
For questions:
Phone: 800-669-4000 (voice) or 800-669-6820 (TDD)
To request documents:
Phone: 800-669-3362 (voice) or 800-800-3302 (TDD)

Food and Drug Administration (FDA)
Office of Special Health Issues
Parklawn Building, HF-12
5600 Fishers Lane
Rockville, MD
Phone: 800-FDA-1088
Internet address: www.fda.gov
Contact the FDA to report side effects or other problems with drug treatment.

Food and Nutrition Information Center
National Agricultural Library/USDA
10301 Baltimore Avenue, Room 304
Beltsville, MD 20705-2351
Internet address: www.nal.usda.gov/food-and-nutrition
This site provides a dietary supplement resource list.

Medicare – Equipment and Supplies Program
Medicare contract suppliers or by calling 1-800-MEDICARE (1-800-633-4227).

National Center for Complementary and Alternative Medicine Clearinghouse
Phone: 888-644-6226
Internet address: www.nccam.nih.gov
You can request free information either on-line or by phone.

National Council Against Health Fraud
Phone: 909-824-4690

National Digestive Diseases Info Clearinghouse
Phone: 301-654-3810
Internet address: digestive.niddk.nih.gov/
You can request free information either on-line or by phone.

National Foundation for Infectious Diseases
Phone: 301-656-0003
Internet address: www.nfid.org

National Institutes of Health
Phone: 301-496-1776
Internet address: www.nih.gov

National Library of Medicine
Internet address: www.nlm.nih.gov

Social Security Disability Line
Phone: 800-772-1213

U.S. Department of Health and Human Services
Internet address: www.healthfinder.com

U.S. Departments of Veterans Affairs
Internet address: www.hepatitis.va.gov/HEPATITIS/products/index.asp

State Medicaid Programs

Many organizations can help you with your co-payments, we have provided a list for your convenience.

American Cancer Society    
Website:  http://www.cancer.org/
Address: 250 Williams Street, Atlanta, GA 30303
404-320-3333 (Responds to calls in English only)
1-800-227-2345 (1-800-ACS-2345) (Responds to calls in English and Spanish)

The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. The ACS offers a variety of services and programs for patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Staff can accept calls and distribute publications in Spanish.

Benefits.gov    
Website:  http://www.benefits.gov/
1-800-333-4636 (1-800-FED-INFO) (Responds to calls in English and Spanish)

Benefits.gov (formerly GovBenefits.gov) is the official benefits Web site of the U.S. Government. The Web site is designed to help users find government benefit and assistance programs for which they may be eligible. The Benefit Finder on the Web site has a list of Core Questions to identify which government benefits you may be eligible to receive.

Cancer Financial Assistance Coalition
Website:  http://www.cancerfac.org/

The Cancer Financial Assistance Coalition (CFAC) is a coalition of organizations that help cancer patients manage their financial challenges by educating them about existing resources. Patients or health care providers can search the CFAC database for organizations that help with specific cancer diagnoses or that provide a specific type of assistance or need. CFAC is a coalition of organizations and cannot respond to individual requests for financial assistance via e-mail or telephone. Patients may contact each CFAC member organization individually for guidance and possible financial assistance.

CancerCare    
Website:  www.cancercare.org

Address: 275 Seventh Avenue, 22nd Floor, New York, NY 10001
212-712-8400 (Administrative)
1-800-813-4673 (1-800-813-HOPE) (Responds to calls in English and Spanish)
Email:  info@cancercare.org

CancerCare provides free professional support for anyone affected by cancer. CancerCare programs include counseling and support groups, cancer education workshops, information on financial assistance, and practical help. Counseling is provided by oncology social workers and is available over the phone and face-to-face (available at offices in New York City, Long Island, New Jersey, and Connecticut). Support groups are offered online, via telephone, and in face-to-face groups. CancerCare also provides free publications, some in Spanish.

Some financial assistance may be available to women with cancer for cancer-related costs such as transportation to and from cancer treatment, child care, and home care. At this time, only limited assistance is available for men with cancer. For details about eligibility, available funding and how to apply, visit the website or call the toll-free number. A section of the CancerCare Web site is available in Spanish.

CancerCare Co-Payment Assistance Foundation
Website:  http://cancercarecopay.org/

Address: 275 Seventh Avenue, 22nd Floor, New York, NY 10001
212-601-9750 (Responds to calls in English and Spanish)
1-866-552-6729 (1-866-55-COPAY) (Responds to calls in English and Spanish)
Email:  information@cancercarecopay.org 

The CancerCare Co-Payment Assistance Foundation was established to address the needs of individuals who cannot afford their insurance co-payments to cover the cost of medications for treating cancer. Specifically, the Foundation assists patients who have been prescribed an oral or intravenous medication (chemotherapy), but are unable to afford the out-of-pocket costs or co-payment responsibility required by the insurer or Medicare. The amount of assistance that people receive depends on factors such as income, amount of funding available, insurance coverage, and the actual co-payments that will be incurred within 1 year. The types of cancer and the medications covered by the Foundation change; for the latest information on available funding contact the Foundation or visit the Web site below.

Children’s Health Insurance Program
Website:  http://www.insurekidsnow.gov/
1-877-543-7669 (1-877-KIDS-NOW) (Responds to calls in English and Spanish)
Email:  CMSOCHIPRAQuestions@cms.hhs.gov

The Children’s Health Insurance Program (CHIP) is a state and federal partnership that provides free or low-cost health coverage for children age 18 and younger whose families earn too much income to qualify for Medicaid but cannot afford to purchase private health insurance coverage. States have considerable flexibility to establish income eligibility rules for CHIP, but children enrolling in the program must be otherwise uninsured. Callers will be referred to the CHIP program in their state for further information about what the program covers, who is eligible, and the minimum qualifications.

Co-Pay Assistance Program
Website:  http://www.lls.org/#/diseaseinformation/getinformationsupport/financialmatters/copayassistance/

Address: Post Office Box 12268, Newport News, VA 23612
1-877-557-2672 (1-877-LLS-COPAY) (Responds to calls in English and Spanish)
Email:  copay@lls.org

The Leukemia and Lymphoma Society’s (LLS) Co-Pay Assistance Program offers financial assistance to patients in meeting their private insurance or Medicare premiums, and co-pays for prescription medication and allowable treatment costs. Only certain blood cancer diagnoses are covered by this program and they are subject to change – check the Co-pay Web site for the latest information. Prescription insurance coverage is required to qualify for this program.

Colorectal CareLine
Website:  http://www.colorectalcareline.org/
Address: 421 Butler Farm Road, Hampton, VA 23666
1-866-657-8634, option 1 (Responds to calls in English and Spanish)
Email:  CCL@patientadvocate.org

The Patient Advocate Foundation’s Colorectal CareLine is a patient/provider hotline designed to provide assistance to patients who have been diagnosed with colorectal cancer and are seeking education and access to care. The Colorectal CareLine is staffed by a team of clinical case managers with both nursing and social work backgrounds who provide individualized service to colorectal cancer patients, their caregivers, and providers who are seeking information and/or assistance. Staff can help with direct appeals assistance, referrals and linkage to educational resources, referrals to co-payment programs, referrals to local, state, and/or national resources for financial assistance, and case management services to uninsured patients.

GoodDays
Website: https://www.gooddaysfromcdf.org/

Good Days exists to improve the health and quality of life of patients with chronic disease, cancer, or other life-altering conditions. The cost of medications to treat chronic disease can be staggering, adding to the despair and suffering of these patients. At Good Days, our mission is to ensure no one has to choose between getting the medication they need and affording the necessities of everyday living.

Health Insurance Assistance Service
Website:  http://www.cancer.org/
404-320-3333 (Responds to calls in English only)
1-800-227-2345 (1-800-ACS-2345) (Responds to calls in English and Spanish)

The Health Insurance Assistance Service (HIAS/ACS) aids cancer patients and survivors who have lost or are in danger of losing their health care coverage, and identifies policy solutions to help others in similar situations. Cancer patients and survivors who call the ACS cancer information number are connected with health insurance specialists who can provide information about consumer protections and health insurance options to address their needs.

Healthcare.gov
Website:  http://www.healthcare.gov/

Address: 200 Independence Avenue, SW., Washington, DC 20201

HealthCare.gov is the first U.S. Department of Health and Human Services central database of health coverage options, combining information about public programs (e.g., Medicare, Medicaid) with information from more than 1,000 private insurance plans. Consumers can search online for health insurance options specific to their life situation and local community. Healthcare.gov also has information about the Affordable Care Act (health care reform). The Pre-Existing Condition Insurance Plan, a new program that is part of the Affordable Care Act, makes health insurance coverage available to persons who have been denied coverage by private insurance companies because of a pre-existing condition. Consumers also have access to quality rankings for hospitals via a Hospital Compare interactive Web tool. In the fall of 2010, price estimates for health insurance plans will be available online and all new health insurance plans will be required to cover evidence-based preventive services, including screenings and vaccinations, at no cost.

HealthWell Foundation®
Website:  http://www.healthwellfoundation.org/
Address: Post Office Box 4133, Gaithersburg, MD 20878
1-800-675-8416 (Responds to calls in English and Spanish)
Email:  info@healthwellfoundation.org

The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance copayments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses. To qualify for assistance, you must meet the Foundation’s insurance, income, and medical criteria. The Foundation will pre-screen over the telephone and if you qualify you will be sent an application. Another option is to answer a few questions online to immediately learn if you qualify for assistance. The Foundation provides assistance for numerous diseases and medications. A full list of the diseases and medications covered is provided on the Foundation’s Web site. The amount of assistance you receive will depend on your income, your insurance coverage, the amount of funding the Foundation has available for assistance, and other factors.

LIVESTRONG
Website:  www.livestrong.org
1-855-220-7777 (Responds to calls in English and Spanish)

LIVESTRONG (formerly Lance Armstrong Foundation) helps anyone affected by cancer; patients, caregivers, family members, and friends. LIVESTRONG provides free, confidential support through education, referrals, and counseling services to help patients and their loved ones manage the physical, emotional, and practical effects of cancer. Call or visit the website to be connected with a LIVESTRONG navigator who can refer you to appropriate programs and resources. Support services include peer to peer matching, counseling, managing financial and insurance concerns, and locating local support groups.

Medicaid (Medical Assistance)
Website:  http://www.medicaid.gov/index.html
Address: 7500 Security Boulevard, Baltimore, MD 21244
1-877-267-2323 (Responds to calls in English only)

Medicaid (Medical Assistance) is a jointly funded, Federal-State health insurance program for low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Although the Federal Government establishes general guidelines for the program, Medicaid is a state-administered program, and each state sets its own guidelines regarding eligibility and services. Information about coverage is available from local state welfare offices, state health departments, state social service agencies, or the state Medicaid office. The Vaccines for Children Program (VCP) provides immunization services for children 18 and under who are Medicaid eligible, uninsured, underinsured, and receiving immunizations through a Federally Qualified Health Center or Rural Health Clinic, or are Native American or Alaska Native. Spanish-speaking staff are available in some offices.

Additional Resources:

Additional State Benefit Programs http://www.benefits.gov/benefits/browse-by-state%20

State Medicaid Offices http://www.benefits.gov/benefits/browse-by-category/category/MED%20

Medicare
Website:  http://www.medicare.gov/

Address: 7500 Security Boulevard, Baltimore, MD 21244
1-800-633-4227 (1-800-MEDICARE) (Responds to calls in English and Spanish)

Medicare is a Federal Government health insurance program that is administered by the Centers for Medicare & Medicaid Services (CMS). Medicare is health insurance for people age 65 or older, under age 65 with certain disabilities, and people of any age with End-Stage Renal Disease. Medicare is divided into four parts – Parts A, B, C, and D. Part A is Hospital Insurance and helps pay for inpatient hospital care and care at nursing facilities, hospice, and home health care services. Part B is Medical Insurance and covers doctor services, outpatient care, and some preventive services. Part C is the Medicare Advantage Plans, which allow you to get Medicare benefits through private companies approved by and under contract with Medicare (includes Part A, Part B, and usually other benefits Medicare doesn’t cover). Most plans also provide prescription drug coverage. Part D is Prescription Drug Coverage and is run by private companies approved by Medicare. Medicare reimburses patient care costs for its beneficiaries who participate in clinical trials designed to diagnose or treat cancer. To receive information on eligibility, explanations of coverage, and related publications, call Medicare or visit their Web site. Some publications are available in Spanish.

National Association of Insurance Commissioners
Website:  http://www.naic.org/
Address: 2301 McGee Street Suite 800, Kansas City, MO 64108
816-783-8500 (Help Desk) (Responds to calls in English only)
1-866-470-6242 (1-866-470-NAIC) (Responds to calls in English and Spanish)
Email:  help@naic.org

The National Association of Insurance Commissioners (NAIC) is the organization of insurance regulators from the 50 states, the District of Columbia, and the 5 U.S. territories. A state insurance regulator’s primary responsibilities are to educate the public about insurance and protect the interests of insurance consumers, and the NAIC helps regulators fulfill that obligation. NAIC assists people who do not have insurance and also fields insurance complaints. NAIC has a Consumer Information Source (CIS) tool on its Web site that provides information on insurance companies that you can review before purchasing insurance. You can obtain information such as closed insurance complaints, licensing information, and key financial data. The Internet address for the CIS tool is listed in the Additional Resources section. Through its award-winning Insure U consumer-education program, the NAIC helps consumers evaluate their options and get smart about insurance. The Insure U Web site provides basic information on the major types of insurance: life, health, auto, and homeowners/renter’s insurance.

Patient Access Network
Website: https://www.panfoundation.org/
Email: contact@panfoundation.org
Address: PO Box 221858, Charlotte, NC 28222
866-316-PANF (7263)

The Patient Access Network (PAN) Foundation is an independent 501(c)(3) organization dedicated to providing help and hope to people with chronic or life-threatening illnesses for whom cost limits access to critical medical treatments.

The National Children’s Cancer Society
Website:  http://www.thenccs.org/
Address: One South Memorial Drive Suite 800, St. Louis, MO 63102
314-241-1600 (General) (Responds to calls in English only)
1-800-532-6459 (1-800-5-FAMILY) (Responds to calls in English only)
Email:  pbeck@children-cancer.org

The National Children’s Cancer Society (NCCS) strives to improve the quality of life for children with cancer and their families worldwide. The NCCS provides support through four programs: Pediatric Oncology Program (offers direct financial support), Care to Share Cancer Connection Program (Internet support network for families), Global Outreach Program (distributes donated cancer-related pharmaceuticals), and Beyond The Cure (helps childhood cancer survivors integrate the cancer experience into their new lives). The Pediatric Oncology Program financial support includes meals during treatment, transportation to and from treatment, long distance telephone cards, lodging during treatment, health insurance premiums, and medical expenses not covered by insurance. The application for financial assistance is available in both English and Spanish. In addition, NCCS offers free publications for order or download from their Web site, as well as access to helpful videos and educational telephone conferences.

Patient Advocate Foundation
Website:  http://www.patientadvocate.org/
Address: 421 Butler Farm Road, Hampton, VA 23666
1-800-532-5274 (Responds to calls in English only)
Email:  help@patientadvocate.org

The Patient Advocate Foundation (PAF) provides professional case management services to Americans with chronic, life-threatening, and debilitating illnesses. PAF case managers (assisted by doctors and health care attorneys) serve as liaisons between the patient and their insurer, employer, and/or creditors to resolve insurance, job retention, and/or debt crisis matters as they relate to the patient’s diagnosis. The PAF seeks to safeguard patients through effective mediation to ensure access to care, maintenance of employment, and preservation of financial stability. PAF publications on health-related topics are available online and in hard copy. PAF has a Scholarship for Survivors program and awards scholarships to individuals under the age of 25 that are or have been diagnosed with cancer or a critical or life-threatening disease.

Sisters Network®, Inc.
Website:  http://www.sistersnetworkinc.org/
Address: 2922 Rosedale Street, Houston, TX 77004
713-781-0255 (Responds to calls in English only)
1-866-781-1808 (Responds to calls in English only)
Email:  infonet@sistersnetworkinc.org

Sisters Network® Inc. (SNI) is a national African American breast cancer survivorship organization that addresses the breast health needs of African American women through its affiliate chapters and partnerships with existing service providers. Sisters Network has a breast cancer assistance program (B-CAP) that provides assistance to women facing financial challenges after diagnosis. The program provides financial assistance for mammograms, copays, office visits, prescriptions, and medical-related lodging and transportation. An application form to apply for assistance may be obtained by calling or sending in a request via e-mail.

State Health Insurance Assistance Program
Website:  http://www.medicare.gov/contacts/organization-search-criteria.aspx

Address
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244

The State Health Insurance Assistance Program (SHIP) is a state program funded by the Federal government to provide information, referrals, and counseling to Medicare recipients and their families/caregivers. Specifically, SHIP counselors provide information on Medigap policies, long-term care insurance, Medicare health plan choices, Medicare rights and protections, and assistance with filing an appeal. The programs in each state often have different names but they all have the same purpose. Services may be received on the telephone or in face-to-face counseling sessions. SHIP counselors are available in every state and in several territories. To find a SHIP counselor, go to the Web site listed in the URL field above. On the left side of the page, under “Search by Organization Name” you can select “SHIP – State Health Insurance Assistance Program” and then select a state or territory from the “Choose a State/Territory” option. Inquirers may also ask their doctor, social worker, or pharmacist about eligibility for other programs.

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer

Website:  http://www.thesamfund.org/

Address
c/o The Nonprofit Center
89 South Street, LL 02
Boston, MA 02211

617-938-3484 (Responds to calls in English only)
1-866-439-9365 (Responds to calls in English only)

Email:  info@thesamfund.org

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer assists cancer survivors in the United States between the ages of 17 and 35 with their transition into a successful posttreatment life. The foundation distributes grants and scholarships in an effort to enable survivors to pursue their educational or professional goals, as well as to help pay for living, job search, and lingering medical expenses. Examples of expenses covered include a wide range of posttreatment financial needs such as undergraduate and graduate tuition and loans, car and health insurance premiums, rent, utilities, current and residual medical bills, fertility-related expenses, gym memberships, and transportation costs. Funds may not be available to all that apply. The SAMFund also offers outreach and information about the post-recovery transition to those approaching the end of treatment.

UnitedHealthcare Children’s Foundation

Website:  http://www.uhccf.org/

MN012-S286
Post Office Box 41
Minneapolis, MN 55440

952-992-4459 (Leave a message) (Responds to calls in English only)

The UnitedHealthcare Children’s Foundation is a nonprofit charity dedicated to improving access to medical-related services for children who have medical needs that are not fully covered by their insurance. The Foundation provides financial assistance in the form of a medical grant to be used for medical services for children (16 years and younger) not covered or not completely covered by commercial health plans.

Co-Pay Assistance for Patients

Many organizations can help you with your co-payments, we have provided a list for your convenience.

American Cancer Society    
Website:  http://www.cancer.org/
Address: 250 Williams Street, Atlanta, GA 30303
404-320-3333 (Responds to calls in English only)
1-800-227-2345 (1-800-ACS-2345) (Responds to calls in English and Spanish)

The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. The ACS offers a variety of services and programs for patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Staff can accept calls and distribute publications in Spanish.

Benefits.gov    
Website:  http://www.benefits.gov/
1-800-333-4636 (1-800-FED-INFO) (Responds to calls in English and Spanish)

Benefits.gov (formerly GovBenefits.gov) is the official benefits Web site of the U.S. Government. The Web site is designed to help users find government benefit and assistance programs for which they may be eligible. The Benefit Finder on the Web site has a list of Core Questions to identify which government benefits you may be eligible to receive.

Cancer Financial Assistance Coalition
Website:  http://www.cancerfac.org/

The Cancer Financial Assistance Coalition (CFAC) is a coalition of organizations that help cancer patients manage their financial challenges by educating them about existing resources. Patients or health care providers can search the CFAC database for organizations that help with specific cancer diagnoses or that provide a specific type of assistance or need. CFAC is a coalition of organizations and cannot respond to individual requests for financial assistance via e-mail or telephone. Patients may contact each CFAC member organization individually for guidance and possible financial assistance.

CancerCare    
Website:  www.cancercare.org

Address: 275 Seventh Avenue, 22nd Floor, New York, NY 10001
212-712-8400 (Administrative)
1-800-813-4673 (1-800-813-HOPE) (Responds to calls in English and Spanish)
Email:  info@cancercare.org

CancerCare provides free professional support for anyone affected by cancer. CancerCare programs include counseling and support groups, cancer education workshops, information on financial assistance, and practical help. Counseling is provided by oncology social workers and is available over the phone and face-to-face (available at offices in New York City, Long Island, New Jersey, and Connecticut). Support groups are offered online, via telephone, and in face-to-face groups. CancerCare also provides free publications, some in Spanish.

Some financial assistance may be available to women with cancer for cancer-related costs such as transportation to and from cancer treatment, child care, and home care. At this time, only limited assistance is available for men with cancer. For details about eligibility, available funding and how to apply, visit the website or call the toll-free number. A section of the CancerCare Web site is available in Spanish.

CancerCare Co-Payment Assistance Foundation
Website:  http://cancercarecopay.org/

Address: 275 Seventh Avenue, 22nd Floor, New York, NY 10001
212-601-9750 (Responds to calls in English and Spanish)
1-866-552-6729 (1-866-55-COPAY) (Responds to calls in English and Spanish)
Email:  information@cancercarecopay.org 

The CancerCare Co-Payment Assistance Foundation was established to address the needs of individuals who cannot afford their insurance co-payments to cover the cost of medications for treating cancer. Specifically, the Foundation assists patients who have been prescribed an oral or intravenous medication (chemotherapy), but are unable to afford the out-of-pocket costs or co-payment responsibility required by the insurer or Medicare. The amount of assistance that people receive depends on factors such as income, amount of funding available, insurance coverage, and the actual co-payments that will be incurred within 1 year. The types of cancer and the medications covered by the Foundation change; for the latest information on available funding contact the Foundation or visit the Web site below.

Children’s Health Insurance Program
Website:  http://www.insurekidsnow.gov/
1-877-543-7669 (1-877-KIDS-NOW) (Responds to calls in English and Spanish)
Email:  CMSOCHIPRAQuestions@cms.hhs.gov

The Children’s Health Insurance Program (CHIP) is a state and federal partnership that provides free or low-cost health coverage for children age 18 and younger whose families earn too much income to qualify for Medicaid but cannot afford to purchase private health insurance coverage. States have considerable flexibility to establish income eligibility rules for CHIP, but children enrolling in the program must be otherwise uninsured. Callers will be referred to the CHIP program in their state for further information about what the program covers, who is eligible, and the minimum qualifications.

Co-Pay Assistance Program
Website:  http://www.lls.org/#/diseaseinformation/getinformationsupport/financialmatters/copayassistance/

Address: Post Office Box 12268, Newport News, VA 23612
1-877-557-2672 (1-877-LLS-COPAY) (Responds to calls in English and Spanish)
Email:  copay@lls.org

The Leukemia and Lymphoma Society’s (LLS) Co-Pay Assistance Program offers financial assistance to patients in meeting their private insurance or Medicare premiums, and co-pays for prescription medication and allowable treatment costs. Only certain blood cancer diagnoses are covered by this program and they are subject to change – check the Co-pay Web site for the latest information. Prescription insurance coverage is required to qualify for this program.

Colorectal CareLine
Website:  http://www.colorectalcareline.org/
Address: 421 Butler Farm Road, Hampton, VA 23666
1-866-657-8634, option 1 (Responds to calls in English and Spanish)
Email:  CCL@patientadvocate.org

The Patient Advocate Foundation’s Colorectal CareLine is a patient/provider hotline designed to provide assistance to patients who have been diagnosed with colorectal cancer and are seeking education and access to care. The Colorectal CareLine is staffed by a team of clinical case managers with both nursing and social work backgrounds who provide individualized service to colorectal cancer patients, their caregivers, and providers who are seeking information and/or assistance. Staff can help with direct appeals assistance, referrals and linkage to educational resources, referrals to co-payment programs, referrals to local, state, and/or national resources for financial assistance, and case management services to uninsured patients.

GoodDays
Website: https://www.gooddaysfromcdf.org/

Good Days exists to improve the health and quality of life of patients with chronic disease, cancer, or other life-altering conditions. The cost of medications to treat chronic disease can be staggering, adding to the despair and suffering of these patients. At Good Days, our mission is to ensure no one has to choose between getting the medication they need and affording the necessities of everyday living.

Health Insurance Assistance Service
Website:  http://www.cancer.org/
404-320-3333 (Responds to calls in English only)
1-800-227-2345 (1-800-ACS-2345) (Responds to calls in English and Spanish)

The Health Insurance Assistance Service (HIAS/ACS) aids cancer patients and survivors who have lost or are in danger of losing their health care coverage, and identifies policy solutions to help others in similar situations. Cancer patients and survivors who call the ACS cancer information number are connected with health insurance specialists who can provide information about consumer protections and health insurance options to address their needs.

Healthcare.gov
Website:  http://www.healthcare.gov/

Address: 200 Independence Avenue, SW., Washington, DC 20201

HealthCare.gov is the first U.S. Department of Health and Human Services central database of health coverage options, combining information about public programs (e.g., Medicare, Medicaid) with information from more than 1,000 private insurance plans. Consumers can search online for health insurance options specific to their life situation and local community. Healthcare.gov also has information about the Affordable Care Act (health care reform). The Pre-Existing Condition Insurance Plan, a new program that is part of the Affordable Care Act, makes health insurance coverage available to persons who have been denied coverage by private insurance companies because of a pre-existing condition. Consumers also have access to quality rankings for hospitals via a Hospital Compare interactive Web tool. In the fall of 2010, price estimates for health insurance plans will be available online and all new health insurance plans will be required to cover evidence-based preventive services, including screenings and vaccinations, at no cost.

HealthWell Foundation®
Website:  http://www.healthwellfoundation.org/
Address: Post Office Box 4133, Gaithersburg, MD 20878
1-800-675-8416 (Responds to calls in English and Spanish)
Email:  info@healthwellfoundation.org

The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance copayments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses. To qualify for assistance, you must meet the Foundation’s insurance, income, and medical criteria. The Foundation will pre-screen over the telephone and if you qualify you will be sent an application. Another option is to answer a few questions online to immediately learn if you qualify for assistance. The Foundation provides assistance for numerous diseases and medications. A full list of the diseases and medications covered is provided on the Foundation’s Web site. The amount of assistance you receive will depend on your income, your insurance coverage, the amount of funding the Foundation has available for assistance, and other factors.

LIVESTRONG
Website:  www.livestrong.org
1-855-220-7777 (Responds to calls in English and Spanish)

LIVESTRONG (formerly Lance Armstrong Foundation) helps anyone affected by cancer; patients, caregivers, family members, and friends. LIVESTRONG provides free, confidential support through education, referrals, and counseling services to help patients and their loved ones manage the physical, emotional, and practical effects of cancer. Call or visit the website to be connected with a LIVESTRONG navigator who can refer you to appropriate programs and resources. Support services include peer to peer matching, counseling, managing financial and insurance concerns, and locating local support groups.

Medicaid (Medical Assistance)
Website:  http://www.medicaid.gov/index.html
Address: 7500 Security Boulevard, Baltimore, MD 21244
1-877-267-2323 (Responds to calls in English only)

Medicaid (Medical Assistance) is a jointly funded, Federal-State health insurance program for low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Although the Federal Government establishes general guidelines for the program, Medicaid is a state-administered program, and each state sets its own guidelines regarding eligibility and services. Information about coverage is available from local state welfare offices, state health departments, state social service agencies, or the state Medicaid office. The Vaccines for Children Program (VCP) provides immunization services for children 18 and under who are Medicaid eligible, uninsured, underinsured, and receiving immunizations through a Federally Qualified Health Center or Rural Health Clinic, or are Native American or Alaska Native. Spanish-speaking staff are available in some offices.

Additional Resources:

Additional State Benefit Programs http://www.benefits.gov/benefits/browse-by-state%20

State Medicaid Offices http://www.benefits.gov/benefits/browse-by-category/category/MED%20

Medicare
Website:  http://www.medicare.gov/

Address: 7500 Security Boulevard, Baltimore, MD 21244
1-800-633-4227 (1-800-MEDICARE) (Responds to calls in English and Spanish)

Medicare is a Federal Government health insurance program that is administered by the Centers for Medicare & Medicaid Services (CMS). Medicare is health insurance for people age 65 or older, under age 65 with certain disabilities, and people of any age with End-Stage Renal Disease. Medicare is divided into four parts – Parts A, B, C, and D. Part A is Hospital Insurance and helps pay for inpatient hospital care and care at nursing facilities, hospice, and home health care services. Part B is Medical Insurance and covers doctor services, outpatient care, and some preventive services. Part C is the Medicare Advantage Plans, which allow you to get Medicare benefits through private companies approved by and under contract with Medicare (includes Part A, Part B, and usually other benefits Medicare doesn’t cover). Most plans also provide prescription drug coverage. Part D is Prescription Drug Coverage and is run by private companies approved by Medicare. Medicare reimburses patient care costs for its beneficiaries who participate in clinical trials designed to diagnose or treat cancer. To receive information on eligibility, explanations of coverage, and related publications, call Medicare or visit their Web site. Some publications are available in Spanish.

National Association of Insurance Commissioners
Website:  http://www.naic.org/
Address: 2301 McGee Street Suite 800, Kansas City, MO 64108
816-783-8500 (Help Desk) (Responds to calls in English only)
1-866-470-6242 (1-866-470-NAIC) (Responds to calls in English and Spanish)
Email:  help@naic.org

The National Association of Insurance Commissioners (NAIC) is the organization of insurance regulators from the 50 states, the District of Columbia, and the 5 U.S. territories. A state insurance regulator’s primary responsibilities are to educate the public about insurance and protect the interests of insurance consumers, and the NAIC helps regulators fulfill that obligation. NAIC assists people who do not have insurance and also fields insurance complaints. NAIC has a Consumer Information Source (CIS) tool on its Web site that provides information on insurance companies that you can review before purchasing insurance. You can obtain information such as closed insurance complaints, licensing information, and key financial data. The Internet address for the CIS tool is listed in the Additional Resources section. Through its award-winning Insure U consumer-education program, the NAIC helps consumers evaluate their options and get smart about insurance. The Insure U Web site provides basic information on the major types of insurance: life, health, auto, and homeowners/renter’s insurance.

Patient Access Network
Website: https://www.panfoundation.org/
Email: contact@panfoundation.org
Address: PO Box 221858, Charlotte, NC 28222
866-316-PANF (7263)

The Patient Access Network (PAN) Foundation is an independent 501(c)(3) organization dedicated to providing help and hope to people with chronic or life-threatening illnesses for whom cost limits access to critical medical treatments.

The National Children’s Cancer Society
Website:  http://www.thenccs.org/
Address: One South Memorial Drive Suite 800, St. Louis, MO 63102
314-241-1600 (General) (Responds to calls in English only)
1-800-532-6459 (1-800-5-FAMILY) (Responds to calls in English only)
Email:  pbeck@children-cancer.org

The National Children’s Cancer Society (NCCS) strives to improve the quality of life for children with cancer and their families worldwide. The NCCS provides support through four programs: Pediatric Oncology Program (offers direct financial support), Care to Share Cancer Connection Program (Internet support network for families), Global Outreach Program (distributes donated cancer-related pharmaceuticals), and Beyond The Cure (helps childhood cancer survivors integrate the cancer experience into their new lives). The Pediatric Oncology Program financial support includes meals during treatment, transportation to and from treatment, long distance telephone cards, lodging during treatment, health insurance premiums, and medical expenses not covered by insurance. The application for financial assistance is available in both English and Spanish. In addition, NCCS offers free publications for order or download from their Web site, as well as access to helpful videos and educational telephone conferences.

Patient Advocate Foundation
Website:  http://www.patientadvocate.org/
Address: 421 Butler Farm Road, Hampton, VA 23666
1-800-532-5274 (Responds to calls in English only)
Email:  help@patientadvocate.org

The Patient Advocate Foundation (PAF) provides professional case management services to Americans with chronic, life-threatening, and debilitating illnesses. PAF case managers (assisted by doctors and health care attorneys) serve as liaisons between the patient and their insurer, employer, and/or creditors to resolve insurance, job retention, and/or debt crisis matters as they relate to the patient’s diagnosis. The PAF seeks to safeguard patients through effective mediation to ensure access to care, maintenance of employment, and preservation of financial stability. PAF publications on health-related topics are available online and in hard copy. PAF has a Scholarship for Survivors program and awards scholarships to individuals under the age of 25 that are or have been diagnosed with cancer or a critical or life-threatening disease.

Sisters Network®, Inc.
Website:  http://www.sistersnetworkinc.org/
Address: 2922 Rosedale Street, Houston, TX 77004
713-781-0255 (Responds to calls in English only)
1-866-781-1808 (Responds to calls in English only)
Email:  infonet@sistersnetworkinc.org

Sisters Network® Inc. (SNI) is a national African American breast cancer survivorship organization that addresses the breast health needs of African American women through its affiliate chapters and partnerships with existing service providers. Sisters Network has a breast cancer assistance program (B-CAP) that provides assistance to women facing financial challenges after diagnosis. The program provides financial assistance for mammograms, copays, office visits, prescriptions, and medical-related lodging and transportation. An application form to apply for assistance may be obtained by calling or sending in a request via e-mail.

State Health Insurance Assistance Program
Website:  http://www.medicare.gov/contacts/organization-search-criteria.aspx

Address
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244

The State Health Insurance Assistance Program (SHIP) is a state program funded by the Federal government to provide information, referrals, and counseling to Medicare recipients and their families/caregivers. Specifically, SHIP counselors provide information on Medigap policies, long-term care insurance, Medicare health plan choices, Medicare rights and protections, and assistance with filing an appeal. The programs in each state often have different names but they all have the same purpose. Services may be received on the telephone or in face-to-face counseling sessions. SHIP counselors are available in every state and in several territories. To find a SHIP counselor, go to the Web site listed in the URL field above. On the left side of the page, under “Search by Organization Name” you can select “SHIP – State Health Insurance Assistance Program” and then select a state or territory from the “Choose a State/Territory” option. Inquirers may also ask their doctor, social worker, or pharmacist about eligibility for other programs.

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer

Website:  http://www.thesamfund.org/

Address
c/o The Nonprofit Center
89 South Street, LL 02
Boston, MA 02211

617-938-3484 (Responds to calls in English only)
1-866-439-9365 (Responds to calls in English only)

Email:  info@thesamfund.org

Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer assists cancer survivors in the United States between the ages of 17 and 35 with their transition into a successful posttreatment life. The foundation distributes grants and scholarships in an effort to enable survivors to pursue their educational or professional goals, as well as to help pay for living, job search, and lingering medical expenses. Examples of expenses covered include a wide range of posttreatment financial needs such as undergraduate and graduate tuition and loans, car and health insurance premiums, rent, utilities, current and residual medical bills, fertility-related expenses, gym memberships, and transportation costs. Funds may not be available to all that apply. The SAMFund also offers outreach and information about the post-recovery transition to those approaching the end of treatment.

UnitedHealthcare Children’s Foundation

Website:  http://www.uhccf.org/

MN012-S286
Post Office Box 41
Minneapolis, MN 55440

952-992-4459 (Leave a message) (Responds to calls in English only)

The UnitedHealthcare Children’s Foundation is a nonprofit charity dedicated to improving access to medical-related services for children who have medical needs that are not fully covered by their insurance. The Foundation provides financial assistance in the form of a medical grant to be used for medical services for children (16 years and younger) not covered or not completely covered by commercial health plans.

Research
The Syndemic: Opioids & Hepatitis C
Beyond Opioids: Other Options for Treating Chronic Pain By James N. Campbell, MD, Special to Everyday Health

TEENAGE TROUBLES: Addressing The Unique Treatment Needs of Adolescents Teen angst is something every now-adult experienced at some point in their youth. The drama-filled teen years seem like a small challenge to those who survived them in generations past, and have since moved on to the the realities of adulthood.

Why We Should Treat, Not Blame Addicts Struggling to Get ‘Clean’
Journalist David Sheff talks with Judy Woodruff about his new book, “Clean: Overcoming Addiction and Ending America’s Greatest Tragedy.”