Hepatitis C Challenge: Hep C Caring Ambassadors Program
HepC Choices

Caring Ambassadors Program
Webinar Series - Archive

Webinar SeriesThe Caring Ambassadors Program in partnership with the National Viral Hepatitis Roundtable and Hepatitis C Advocates United is pleased to announce our new Webinar series. Each month we will be hosting an interactive educational webinar on viral hepatitis. We hope you will actively participate as we collectively augment our knowledge base from experts in the field.

 

Archived Webinars

Leveraging the IOM Report on Viral Hepatitis

Webinar Audio and Slide Presentation: Leveraging the IOM Report

About the Presenters

Daniel Church, MPH

Mr. Church is a member of the IOM's Committee on the Prevention and Control of Viral Hepatitis. He is the Adult Viral Hepatitis Prevention Coordinator and an Epidemiologist in the Bureau of Infectious Disease Prevention, Response, and Services at the Massachusetts Department of Public Health. He coordinates the statewide viral hepatitis program including disease surveillance, medical management services, counseling and testing programs, adult vaccination programs, educational campaigns for providers, patients and communities, and evaluation of projects. Mr. Church received his MPH in epidemiology and biostatistics from the Boston University School of Public Health.

Lorren Sandt

Ms. Sandt is the co-founder and Executive Director of the Caring Ambassadors Program. She has managed the Hepatitis C Program of the Caring Ambassadors Program since its inception in 1999. Lorren is a co-editor and a contributing author, to Hepatitis C Choices, 4th Edition, a one-of-a-kind, patient-centered book authored by a team of more than 25 multi-disciplined experts in hepatitis C. She has worked on policy changes at both the state and federal level since 2001. Lorren is the founder and past President of the National Hepatitis C Advocacy Council, Chair of the National Viral Hepatitis Roundtable, co-moderator of Hepatitis C Advocates UNITED, and a member of the Hepatitis C Appropriations Partnership.

Martha Saly

Ms. Saly is the Director of the National Viral Hepatitis Roundtable (NVHR). Martha manages NVHR's general operations and represents NVHR in a partnership with the National Alliance of State and Territorial AIDS Directors (NASTAD) under a cooperative agreement with the Centers for Disease Control. The partnership works to improve linkages and collaboration between viral hepatitis organizations around the nation.

About NVHR

The National Viral Hepatitis Roundtable is a coalition of public, private, and voluntary organizations dedicated to reducing the incidence of infection, morbidity, and mortality from viral hepatitis in the United States

 

Advocacy 101
Making the Most of Your Message

View Slide Presentation and download Powerpoint file

Learn how to be an effective advocate to help increase funding for viral hepatitis.

About the Presenter

Lorren Sandt - Executive Director, Caring Ambassadors Program Chair, NVHR

Ms. Sandt is the co-founder and Executive Director of the Caring Ambassadors Program. She has managed the Hepatitis C Program of the Caring Ambassadors Program since its inception in 1999. Lorren is a co-editor and a contributing author, to Hepatitis C Choices, 4th Edition, a one-of-a-kind, patient-centered book authored by a team of more than 25 multi-disciplined experts in hepatitis C. She has worked on policy changes at both the state and federal level since 2001. Lorren is the founder and past President of the National Hepatitis C Advocacy Council, Chair of the National Viral Hepatitis Roundtable, co-moderator of Hepatitis C Advocates UNITED, and a member of the Hepatitis C Appropriations Partnership.

 

Title: Congressional Communications 101

Tips to increase the effectiveness of your message when communicating with YOUR elected officials in Congress and their staff.

About the Presenter

Jeremy Allen - Director, Government Affairs and Public Policy, Vertex Pharmaceuticals, Inc.

Jeremy Allen joined Vertex's Government Affairs and Public Policy department in June 2008. Prior to joining Vertex, Jeremy spent four years with Johnson & Johnson's Government Affairs & Policy department in Washington, DC. Jeremy held several positions of increasing responsibility at Johnson & Johnson, most recently as Director, Federal Affairs and Political Programs. In that role, Jeremy managed legislative and regulatory issues impacting Johnson & Johnson's pharmaceutical businesses. He also managed the Political Programs team, which included Johnson & Johnson's political action committee. Before joining Johnson & Johnson, Jeremy served as the Health Policy Coordinator for the House Energy and Commerce Committee. In this role he was Health Subcommittee Chairman Mike Bilirakis' key healthcare staff person, and he worked in tandem with the full committee staff on all aspects of the Health Subcommittee's legislative activities. Prior to joining the committee in June 2003, Jeremy served as Chairman Bilirakis' health policy advisor, where he advised the chairman on all aspects of healthcare policy.

 

Title: The Next Generation of HCV Drugs

The standard of care for hepatitis C is changing; many new treatments are in development including new oral anti-viral drugs that block hepatitis C by targeting steps in the virus lifecycle. What can people expect from the next generation of HCV drugs? Who is likely to benefit from them? What are their potential pitfalls, such as additional side effects and drug resistance?

About the Presenter

Tracy SwanTracy Swan is Hepatitis/HIV Project Director at Treatment Action Group, where she oversees development of treatments for hepatitis C virus (HCV). She advocates for a broad and inclusive research agenda so that registration trials yield clinically relevant information and identify optimal standards of care for people with HCV. She pushes for early evaluation of HCV drugs in HIV/HCV coinfected people, and studies of HIV drugs in people coinfected with viral hepatitis. She develops and promotes policies to increase access to and quality of care for mono-and coinfected persons.
The HCV Pipline in PDF format.

 

Title: The Power of Many Voices: Your Role in State and Local Advocacy.

Presenters: Ryan Clary, Project Inform
Chris Taylor, National Alliance of State and Territorial AIDS Directors

2009 HCAU State Level Advocacy Presentation in PowerPoint format.

Local Advocacy Webinar in PowerPoint format

The Power of Many Voices: Hepatitis Advocacy at the State Level

Most hepatitis advocacy efforts focus on increasing federal appropriations and hepatitis specific legislation. While these efforts are important, advocates should also be working at the state level to increase funding for needed services. This presentation will include specific examples of how state advocates can utilize national advocacy materials for state level advocacy and strategies for increasing advocacy in your state. Also included will be the top 10 things state level advocates can do to make a difference.

Chris TaylorChris Taylor is the Senior Manager, Viral Hepatitis for the National Alliance of State and Territorial AIDS Directors (NASTAD). In this role, he provides support and technical assistance to state health department viral hepatitis programs, advocates on their behalf with the Administration, Congress and Federal agencies. He is actively involved in several national hepatitis advocacy coalitions, provides leadership as Chair of the National Viral Hepatitis Roundtable (NVHR), and is the North American delegate to the World Hepatitis Alliance. Mr. Taylor has 14 years of experience working in public health on viral hepatitis, HIV, STD, tuberculosis and immunization at the local, state and national level.

Local advocacy:

Advocating at the local level can be an effective way to secure funding for hepatitis prevention, testing, and care services. Many advocates have successfully established task forces at the city and county levels that work with local government on strategies to address hepatitis. This section will feature a recent success story in San Francisco and how a handful of people were able to convince the mayor to take a leadership role in fighting hepatitis.

Ryan ClaryRyan Clary is the Director of Public Policy at Project Inform. He advocates at the national, state, and local levels on HIV and hepatitis C policy issues. He is a co-founder of Hepatitis C Advocates UNITED!, a national grassroots coalition of advocates working to increase the federal government’s response to the HCV epidemic.

 

 

 

Coming Together At The Table: HCV & HBV

Slide presentation in pdf format and a PowerPoint presentation in PPT format.

 

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Archived Webinars

Leveraging the IOM Report

Advocacy 101

Congressional Communications 101

The Next Generation of HCV Drugs

The Power of Many Voices: Your Role in State and Local Advocacy

Coming Together At The Table: HCV & HBV

Hepatitis C can show no symptoms until advanced liver damage develops.

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