Hepatitis C Challenge: Hep C Caring Ambassadors Program
HepC Choices

Caring Ambassadors Program
Webinar Series

 

Webinar Series

The Caring Ambassadors Program in partnership with the National Viral Hepatitis Roundtable and Hepatitis C Advocates United is pleased to announce our new Webinar series. Each month we will be hosting an interactive educational webinar on viral hepatitis. We hope you will actively participate as we collectively augment our knowledge base from experts in the field.

 

Lorren Sandt's Room

Date/Time: Always Available
Lorren Sandt's Room Recording (11/19/2013)
Instructor: Lorren Sandt
Open: https://caringambassadors.ilinc.com/join/xjxpbpp

 

Liver Cancer and Hepatitis C

Register for this free webinar

Date: Wed., April 3rd
Time: 3 pm EST; 12 pm PST

Presented by

Douglas LaBrecque, MD
Professor of Medicine and Director of the Liver Service at the University of Iowa. Dr. LaBrecque also served as Chief of GI and Hepatology at the Iowa City VA Hospital for 19 years. He has conducted extensive research on the development and treatment of hepatitis C, hepatitis B, and other liver diseases, including liver transplantation with more than 100 peer-reviewed manuscripts, three books, 22 book chapters and over 150 abstracts.

For more details: www.livercancerconnect.org

 

 

2013 Liver Cancer Webinar Series

A dedicated program of the Hepatitis B Foundation
Liver Cancer and Hepatitis B: What You Need to Know

Learn About Liver Cancer
Join the Hepatitis B Foundation's webinar series to learn about the risk factors for liver cancer and the importance of liver cancer screening and surveillance. The expert presenters will describe currently available treatment options and clinical trials.

For More Information
Visit www.LiverCancerConnect.org for accurate, patient-focused information about liver cancer.

Liver Cancer and Hepatitis B

Register for this free webinar
Date: Wed., March 6th
Time: 12 pm EST; 9 am PST
Presented by
Robert G. Gish, MD
Clinical Professor of Medicine, Section Chief of Hepatology and Co-Director of the Center for Hepato-biliary Disease and Abdominal Transplantation at the University of California, San Diego Health Systems. Dr. Gish has an active research program in viral hepatitis and has published more than 600 original articles, abstracts, and book chapters, and more than 120 peer-reviewed publications.

 

 

The Centers for Medicare & Medicaid Services (CMS)

invites you to participate in a webinar to learn more about the Single, Streamlined Application for Health Insurance.

This webinar will walk through the recently released proposed Department of Health and Human Services (HHS) Single, Streamlined Application for individuals. The documents include draft paper applications and a list of all potential questions in the online application that individuals will complete to determine their eligibility to purchase coverage through the Health Insurance Marketplace and for insurance affordability programs, including Medicaid, the Children’s Health Insurance Program (CHIP), and advance payments of the premium tax credit (APTC). The documents are available for public comment until February 28, 2013. To show how users may interact dynamically with the online application, CMS has posted two videos demonstrating how an application can be completed.

  • If you’d like to view the entire PRA package, visit go.cms.gov/PRA-Listing to view CMS-10440, CMS-10439, and CMS-10438.
  • To view the videos demonstrating the application, visit go.cms.gov/PRA-Scenarios
  • To comment on the application package, send your feedback to: OMB, Office of Information and Regulatory Affairs, Attention: CMS Desk Officer, Fax Number: (202) 395-6974 or Email: OIRA_submission@omb.eop.gov.

WEBINAR INFORMATION

Date: Friday, February 8, 2013
Time: 1:30pm – 3:00pm (EST)
Call-In Number: 877-267-1577 and Passcode: 7290
Webinar: https://webinar.cms.hhs.gov/learnmoressapp2/
OR
Date: Monday, February 11, 2013
Time: 1:00pm – 2:30pm (EST)
Call-In Number: 877-267-1577 and Passcode: 5620
Webinar: https://webinar.cms.hhs.gov/learnmoressapp2/

 

National Medicare Education Program (NMEP) Medicare Open Enrollment Webinar

Thursday, October 4, 2012 - 2:00 p.m. to 3:30 p.m., EST
Webinar ID: https://webinar.cms.hhs.gov/oewebinar1004
Call-in number: 1-877-267-1577 Meeting ID: 3358

Please join both the Audio Call and the Webinar

The annual Medicare Open Enrollment Period is October 15 – December 7, 2012. It is time for people with Medicare to compare plans and make sure they have the right health and prescription drug coverage.

This webinar is designed to provide you with an overview of the differences between the types of Medicare plans and what that means to people with Medicare, how to compare plans, important issues to consider in choosing a plan and where you can get more information or assistance on making a selection. Helpful information about the Annual Open Enrollment campaign, MA & Part D plan update, Medicare Advantage Landscape, Part D Benefit, and Medicare Plan finder October update will also be presented.

Please email Anne.Avery@cms.hhs.gov or Janet.Miller2@cms.hhs.gov if you have questions or suggestions.

 

 

Webinar Announcement: CDC Overview of HCV Screening Guidelines

Draft Recommendations for the Identification of Hepatitis C Virus (HCV) Chronic Infection Among Persons Born during 1945 through 1965.**

Date: Tuesday, May 29, 2012
Time: 12:30 PM PDT/3:30 PM EDT

To Register: https://caringambassadors.ilinc.com/register/rbzhwwc

To Join: https://caringambassadors.ilinc.com/join/rbzhwwc

Primary Dial-In: 1-469-759-7753
Alternate Dial-In: 1-800-201-2375
Passcode: 327238

Want to prepare your system ahead of time? https://caringambassadors.ilinc.com/systest/rbzhwwc

Agenda

Introducing the guidelines: John Ward, MD – Division Director, CDC Division of Viral Hepatitis (DVH)

Supportive Research: Bryce Smith, Ph.D. – Team Lead, Prevention Research and Evaluation Team, CDC DVH

Community Call to Action: Ryan Clary – Director of Public Policy, Project Inform & NVHR Executive Committee Secretary

** The document is located at: www.regulations.gov. Search for Docket ID: CDC_2012_0005. This page will provide you with the opportunity to view the Federal Register Notice of the posting of this draft, as well as the actual recommendations. Comments on the recommendations can be submitted through a link on the page for the notice

 

Recording:

The recording of Hepatitis C Patient Assistance Programs is available.
Please login to view this recording: https://caringambassadors.ilinc.com/join/fxmprhj

 

Slide Presentations:

Merck-CARES PDF Slide Presentation

Vertex Guidance & Patient Support Services (GPS) Powerpoint Slide Presentation

Kadmon Pharmaceuticals, LLC, Patient Support Programs PDF Slide Presentation

 

SAVE THE DATE: October 26, 2011

HEPATITIS C PATIENT ASSISTANCE PROGRAMS WEBINAR

Please join us for this unprecedented event.

Merck, Genentech and Vertex will all present their Patient Assistance Programs on one webinar.

Everyone is welcome.

Please spread the word to everyone in your community who serves people living with hepatitis C.

 

Webinar Details:

Title: Hepatitis C Patient Assistance Programs

Date: 10/26/11

Presentation Schedule: Each Company will do a 15 minute presentation followed by 15 minutes of Q&A.

Merck CARES 2:30 PM EST/ 11:30 AM PST

Vertex GPS: Guidance and Patient Support 3:00 PM EST/ 12:00 PM PST

Genentech Access Solutions Program 3:30 PM EST/ 12:30 PST

Registration Link: https://caringambassadors.ilinc.com/register/fmcmtmw

Please log in at least 10 minutes prior to the start of the program to ensure connectivity.

 
Food and Drug Administration

FDA Teleconference - May 23, 2011

The Food and Drug Administration (FDA) invites you to participate in a teleconference briefing to discuss two Direct Acting Antivirals (DAAs) for the treatment of hepatitis C, boceprevir and telaprevir, that were discussed at an April 27 -28, 2011 meeting of the FDA Antiviral Drugs Advisory Committee. DAAs represent a significant addition to the treatment approach for many patients. However, the dosing regimens may be complex, and there are treatment issues about which health care providers and patients should be aware.

The teleconference will be held on Monday, May 23, 2011 from 3:30 PM to 4:30 PM EDT. The toll-free number is 888-324-7513 . The passcode is FDA.

Following a brief introduction by Margaret Hamburg, Commissioner of the Food and Drug Administration, the briefing will provide an overview of the clinical trials, primary efficacy, safety, and complexity of dosing regimens. The briefing will consist of presentations by Debra Birnkrant, M.D, Director, and Jeffery Murray, Deputy Director, Division of Antiviral Products, Center for Drug Evaluation and Research (CDER), followed by an opportunity for questions from call participants. The briefing will be moderated by Richard Klein, FDA Office of Special Health Issues.

A replay will be available for 30 days, beginning approximately one hour after the briefing call ends. The recall number is 1.866.419.2882. No password is required.

Alternatively, you can Download Audio Recording (22 MB) (http://www.fda.gov/ForConsumers/ByAudience/ForPatientAdvocates/ucm256712.htm)

 

The Community Response Webinar

The recording of HHS Action Plan - The Community Response is available.
To view this recording: https://caringambassadors.ilinc.com/join/ppsmrth

Date & Time: May 16, 2011 at 12:00 PM Pacific Time

On May 12, 2011 HHS will release the first ever national strategy for viral hepatitis. Join us for this informative webinar as we explore what the plan does, and what it does not do, from the community perspective. Learn how you can use the plan to support the addition of viral hepatitis services into local health policy. As always, we will leave plenty of time for questions and answers.

About the Presentation Team:

Ryan Clary

Mr. Clary is the Director of Public Policy at Project Inform. He advocates at the national, state, and local levels on HIV and hepatitis C policy issues. He is a co-founder of Hepatitis C Advocates UNITED!, a national grassroots coalition of advocates working to increase the federal government’s response to the HCV epidemic.

Daniel Raymond

Mr. Raymond is the Policy Director for the Harm Reduction Coalition in New York and a Steering Committee member of the National Viral Hepatitis Roundtable. His work focuses on syringe access, HIV, hepatitis C, and overdose prevention. He has worked in the field of harm reduction and syringe exchange for two decades, and provided testimony to the Institute of Medicine on hepatitis C prevention for people who inject drugs.

Lorren Sandt

Ms. Sandt is the co-founder and Executive Director of the Caring Ambassadors Program. She has managed the Hepatitis C Program of the Caring Ambassadors Program since its inception in 1999. Lorren is a co-editor and a contributing author, to Hepatitis C Choices, 4th Edition, a one-of-a-kind, patient-centered book authored by a team of more than 25 multi-disciplined experts in hepatitis C. She has worked on policy changes at both the state and federal level since 2001. Lorren is the Chair of the National Viral Hepatitis Roundtable, a member of the Hepatitis Community Advisory Board, the Fair Pricing Coalition, a member of the Hepatitis Appropriations Partnership, and co-moderator of Hepatitis C Advocates UNITED.

Colin Schwartz

Mr. Schwartz is the Manager, Viral Hepatitis/Government Relations for the National Alliance of State & Territorial AIDS Directors (NASTAD). In this role, he provides program and policy assistance to state health department viral hepatitis programs and advocates on their behalf with the Administration, Congress and Federal Agencies. Mr. Schwartz is actively involved in several national hepatitis advocacy coalitions including serving as the Coordinator for the Hepatitis Appropriations Partnership (HAP). He has policy experience in HIV and viral hepatitis, comprehensive sex education and sexual health, with expertise on Congressional Appropriations for public health programs.

To register for this webinar: https://caringambassadors.ilinc.com/register/zkycvfp

To join this webinar: https://caringambassadors.ilinc.com/join/zkycvfp

Dial-In: 1-800-201-2375 or 1-469-759-7753   Passcode: 327238

Webcast Information for the April 27 & 28, 2011, Antiviral Drugs Advisory Committee (AVDAC) Meeting:

The FDA plans to provide a live webcast of the April 27 & 28, 2011, meeting of the Antiviral Drugs Advisory Committee. Please note that the webcast will not display until the meeting begins at approximately 8:00 a.m. EDT on April 27 & 28, 2011. Also, while the FDA is working to make webcasts available to the public for all AC meetings held at the White Oak campus, there are instances where the webcast transmission is not successful; staff will work to re-establish the transmission as soon as possible. FDA plans to post archived webcasts after the meeting, however, in cases where transmission was not successful, archived webcasts will not be available.

The meeting webcast can be accessed at the following web address: https://collaboration.fda.gov/adac427/ Note: At the access page, please sign in as a guest. No password is required. See attached PDF file for more info.

Meeting materials for FDA's committee for telaprevir:
http://www.fda.gov/AdvisoryCommittees/Calendar/ucm247242.htm
http://www.fda.gov/AdvisoryCommittees/ CommitteesMeetingMaterials/ Drugs/AntiviralDrugsAdvisoryCommittee

Health Reform 101: Learn what people living with hepatitis may gain from health reform and how we can all defend it.

Meeting Description:

We are approaching the one year anniversary of the Affordable Care Act being signed into law. This law has the potential to help many people living with and at risk for hepatitis B and C. However, the law continues to be under attack by many in Congress who want to repeal it and/or defund it.

This webinar will provide an overview of key provisions in the law and what they mean for our community. We will also provide tips on how you can communicate with your Members of Congress at home about the need to protect this law.

Date: Thu, Mar 17, 2011
Time: 03:00 PM EDT
Duration: 1 hour
Register: https://cc.readytalk.com/r/1yhevj1ltpge

Featured speakers:

  • Anne Donnelly, Director of Health Care Policy, Project Inform
  • Rachel McLean, California Viral Adult Hepatitis Prevention Coordinator

Sponsored by Hepatitis Health Action, the Hepatitis Appropriations Partnership, the National Viral Hepatitis Roundtable, Caring Ambassadors Program, Association of Asian Pacific Community Health Organizations.

Title: Hepatitis Advocacy At Home

Our elected officials have told us again that they want to hear from their constituents. They have set aside time at home to listen. It is up to you to speak. Learn what simple action steps you can take next week to help people living with hepatitis B or C.

The recording of "Hepatitis Advocacy At Home" is available. To view this recording: https://caringambassadors.ilinc.com/join/jjtrzmk. Please login to review the recording.

About the Presenters

Corinna Dan, RN, MPH, is the Hepatitis B Fellow at the Association of Asian Pacific Community Health Organizations (AAPCHO).

Colin Schwartz, Colin Schwartz, Senior Associate, Viral Hepatitis/Government Relations National Alliance of State & Territorial AIDS Directors

Webinar Details:
Title: Hepatitis Advocacy At Home
Date & Time: 02/18/2011 at 12:00 PM Pacific Time/ 3PM Eastern Time
Duration: 1 hour(s)

Alert! Funding for Health Care Reform and CDC’s Viral Hepatitis Program are in Jeopardy (PDF format)

This webinar is a collaborative effort of the Caring Ambassadors Program (CAP), Hepatitis Appropriations Partnership (HAP), National Viral Hepatitis Roundtable (NVHR) and Association of Asian Pacific Community Health Organizations (AAPCHO).

Please distribute widely!

 

Leveraging the IOM Report on Viral Hepatitis

Webinar Audio and Slide Presentation: Leveraging the IOM Report

The National Viral Hepatitis Roundtable, in partnership with the Caring Ambassadors Program are pleased to announce a webinar on January 12, 2010, for advocates to learn about the Institute of Medicine's Report on Viral Hepatitis that is being released to the public on Monday, January 11, 2010. Hear what it says and learn how you can leverage the findings to advocate for viral hepatitis programs and services in your area.

 

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Archived Webinars

Leveraging the IOM Report

Advocacy 101

Congressional Communications 101

The Next Generation of HCV Drugs

The Power of Many Voices: Your Role in State and Local Advocacy

Coming Together At The Table: HCV & HBV

Hepatitis C can show no symptoms until advanced liver damage develops.

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