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Hepatitis C in the News

Stalking a Furtive Killer
A Review of the Federal Government's Efforts to Combat Hepatitis C

Tuesday, December 14, 2004 2:00 PM
 

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July 20, 2005 05:05 PM US Eastern Timezone

Caring Ambassadors Hepatitis C Program Dismayed by Oregon Governor Ted Kulongoski's Veto of Hepatitis C Legislation

OREGON CITY, Ore.--(BUSINESS WIRE)--July 20, 2005--The Caring Ambassadors Hepatitis C Program (CAP-Hepatitis C) announced that they had received notification on July 19th from the office of Oregon Governor Ted Kulongoski that he had vetoed hepatitis C legislation overwhelmingly passed by both the Oregon House and Senate. The legislation, HB 2480, would have prevented the Oregon Department of Human Services from restricting the drugs available to patients with hepatitis C covered by the Oregon Health Plan's fee-for service program. The bill was introduced in February 2005 at the request of the Caring Ambassadors Hepatitis C Program, a national nonprofit hepatitis C education and advocacy organization based in Oregon City, Oregon. Existing statutory limitations are already in place to prevent the Oregon Department of Human Services from restricting patient access to potentially life-saving drugs used to treat other life-threatening diseases including cancer, HIV/AIDS, and mental illnesses. Governor Kulongoski's veto of HB 2480 is particularly remarkable given the overwhelming support for the bill in the Oregon legislature. HB 2480 was approved with 41 ayes to 15 nays in the House, and 27 ayes to 1 nay in the Senate, demonstrating the strong bipartisan support for the bill. Governor Kulongoski reportedly began talk of vetoing HB 2480 in early February 2005, long before the bill reached the floor of the House or the Senate.

Hepatitis C is the most common chronic, blood-borne viral infection in the United States. Hepatitis C is the leading cause of chronic liver disease in the U.S., which now ranks among the top ten killers of adults over the age of 25 years. An estimated 3.9 to 4.5 million Americans have been infected with the hepatitis C virus including at least 64,000 Oregonians. The current methamphetamine crisis is likely to fuel an expanding hepatitis C epidemic in Oregon, a startling backdrop to Governor Kulongoski's veto of HB 2480.

Caring Ambassadors Hepatitis C Program Manager Lorren Sandt stated, "We are deeply distressed by Governor Kulongoski's use of his executive power to exercise his minority opposition to HB 2480. Like cancer and HIV/AIDS, chronic hepatitis C is a life-threatening illness. Medical treatment decisions to optimize care for illnesses that threaten both individual lives and the overall health and safety of the public should be made on a case-by-case basis by treating physicians, not a political bureaucracy. The Governor's veto of HB 2480 has dealt a blow to all Oregonians, not just those currently infected with hepatitis C. All people with hepatitis C should have access to the drugs that are most likely to be effective, regardless of the source of payment. But with the Governor's veto of HB 2480, hepatitis C patients receiving care under the Oregon Health Plan's fee-for-service program are now in a position to have to take whatever drugs the state deems they can have access to."

The Caring Ambassadors Hepatitis C Program will continue efforts to inform state and national policy-makers about the urgent personal and public health threats posed by the hepatitis C epidemic. Caring Ambassadors Hepatitis C Program Medical Director, Dr. Tina M. St. John, stated, "While we must respectfully agree to disagree with Governor Kulongoski on his veto of HB 2480, we will continue to work with the governor, the state legislature, and the Oregon Department of Human Service to ensure optimized care for all Oregonians with chronic hepatitis C, and to fully implement effective hepatitis C control and prevention."

For additional information about the Caring Ambassadors Hepatitis C Program (CAP-Hepatitis C), contact Lorren Sandt at 1-877-737-4372 or lorren@hepcchallenge.org, or visit CAP-Hepatitis C online at www.hepcchallenge.org.
 

 

 

The Oregonian

Governor, lawmakers split over Hepatitis C drugs

The debate centers around the state's ability to control the cost of prescription medication under the Oregon Health Plan
Thursday, June 30, 2005
MICHELLE COLE

SALEM -- Gov. Ted Kulongoski and the Oregon Legislature are battling over whether the state has the right to decide what types of drugs are prescribed to Oregon Health Plan patients with Hepatitis C.

An estimated 900 patients may be directly affected by House Bill 2480, which would prohibit the Department of Human Services from limiting the types of prescription drugs used to treat the infectious and potentially deadly disease. But if HB2480 became law, critics say, the pharmaceutical industry would be the biggest winner.

At issue is the state's ability to control prescription drug costs under the Oregon Health Plan.

"Drug companies are very powerful. They want to protect themselves," said Rep. Mitch Greenlick, a Portland Democrat who is also associate director of the Evidence-based Practice Center at Oregon Health & Science University.

Proponents of the bill -- ranging from grass roots organizations to two pharmaceutical companies -- say they understand the state's need to control prescription drug costs. But they argue that Hepatitis C is difficult to treat and physicians caring for Oregon Health Plan patients should have the full menu of drug choices.

"This is not a case where you can save a few dollars. People are dying of this disease," said Lorren Sandt, executive director of the Caring Ambassadors Hepatitis C Program, a national advocacy group based in Oregon City.

The 2001 Legislature created a law that included a list of lower cost drugs doctors must prescribe to Oregon Health Plan patients. The requirement did not apply to prescription drugs used to treat mental illness, HIV, AIDS and cancer. HB2480 would put Hepatitis C drugs in a similar category.

Hepatitis C is spread by blood contact and can be transmitted by IV drug use, sharing razor blades, body piercing or tainted blood transfusions. An estimated 61,585 Oregonians may be infected with the disease and the majority may not know it.

Untreated, Hepatitis C can lead to cirrhosis, liver failure and cancer. But treatment is expensive, costing between $20,000 to $36,000 for six to 12 months of drug therapy.

Though the governor's staff has voiced concerns, HB2480 has received broad bipartisan support.

Last month, the Republican-led House endorsed HB2480 on a 41-15 vote. The bill recently passed the Senate Rules Committee and is headed for a floor vote within the week. Observers say it has a good chance of passing the Senate and making it to the governor's desk.

On Wednesday, Kulongoski spokeswoman Anna Richter Taylor could not say whether the governor would veto the bill. But Taylor said he wants to protect the state's ability to provide the most cost-effective care through the Oregon Health Plan.

A recent evaluation found 27 percent of the Oregon Health Plan fee-for-services patients who started Hepatitis C drug therapy did not complete it. The wasted cost of ineffective treatment was estimated by the state to be as much as $22,000 per patient.

Barney Speight, a former administrator of Oregon's Office of Medical Assistance, said the state developed a protocol to ensure that the right people are matched with the right Hepatitis C drugs.

"The kinds of protocols and guidelines we've developed are not developed in a bureaucratic vacuum," Speight said. "But the pharmaceutical industry dislikes government-imposed approaches."

Hasina Squires, a lobbyist for Roche Pharmaceuticals, said HB2480 is not about government but about "allowing patients to access all types of treatment."

Sen. Alan Bates, D-Ashland, a family practice physician, comes down somewhere in between.

"The pharmaceutical industry will always be pushing their products," said Bates.

Still, Bates said he's willing to push for HB2480 -- and risk a governor's veto -- because doctors "not bureaucrats in Salem" should be making treatment decisions.

Michelle Cole: 503-294-5143; michellecole@news.oregonian.com

 

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